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  1. #61
    Permanent Resident Shezza22's Avatar
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    Default Re: Autism

    @Hidden Content
    mau nanya apakah kemarin diagnosa nya hanya karena anak belum bisa bicara saja? karena untuk diagnosa autis itu harus ada restricted atau repetitive pattern of behaviour minimal 2. diagnosa autis itu ada standarisasi nya dan manual nya namanya DSM 5. dan ini seharusnya berlaku seluruh dunia. dan juga 1 behaviour yang sama dari anak nya itu ga boleh di pake untuk memenuhi 2 kriteria diagnosis yang berbeda. karena kadang salah diagnosis, treatment juga ga tepat. dan juga autism is a spectrum, di dalamnya banyak disorder atau combination of disorder. treatment yang paling efektif harus multi-faceted.
    I am a practising clinical neuropsychologist btw.


    for reference ya ini aku kasih diagnosis criteria for autism in DSM 5:

    Diagnostic Criteria for 299.00 Autism Spectrum Disorder


    1. Persistent deficits in social communication and social interaction across multiple contexts, as manifested by the following, currently or by history (examples are illustrative, not exhaustive; see text):
      1. Deficits in social-emotional reciprocity, ranging, for example, from abnormal social approach and failure of normal back-and-forth conversation; to reduced sharing of interests, emotions, or affect; to failure to initiate or respond to social interactions.
      2. Deficits in nonverbal communicative behaviors used for social interaction, ranging, for example, from poorly integrated verbal and nonverbal communication; to abnormalities in eye contact and body language or deficits in understanding and use of gestures; to a total lack of facial expressions and nonverbal communication.
      3. Deficits in developing, maintaining, and understand relationships, ranging, for example, from difficulties adjusting behavior to suit various social contexts; to difficulties in sharing imaginative play or in making friends; to absence of interest in peers.

    Specify current severity:
    Severity is based on social communication impairments and restricted, repetitive patterns of behavior.

    1. Restricted, repetitive patterns of behavior, interests, or activities, as manifested by at least two of the following, currently or by history (examples are illustrative, not exhaustive; see text):
      1. Stereotyped or repetitive motor movements, use of objects, or speech (e.g., simple motor stereotypes, lining up toys or flipping objects, echolalia, idiosyncratic phrases).
      2. Insistence on sameness, inflexible adherence to routines, or ritualized patterns of verbal or nonverbal behavior (e.g., extreme distress at small changes, difficulties with transitions, rigid thinking patterns, greeting rituals, need to take same route or eat same food every day).
      3. Highly restricted, fixated interests that are abnormal in intensity or focus (e.g., strong attachment to or preoccupation with unusual objects, excessively circumscribed or perseverative interests).
      4. Hyper- or hyporeactivity to sensory input or unusual interest in sensory aspects of the environment (e.g. apparent indifference to pain/temperature, adverse response to specific sounds or textures, excessive smelling or touching of objects, visual fascination with lights or movement).

    Specify current severity:
    Severity is based on social communication impairments and restricted, repetitive patterns of behavior.

    1. Symptoms must be present in the early developmental period (but may not become fully manifest until social demands exceed limited capacities, or may be masked by learned strategies in later life).
    2. Symptoms cause clinically significant impairment in social, occupational, or other important areas of current functioning.
    3. These disturbances are not better explained by intellectual disability (intellectual developmental disorder) or global developmental delay. Intellectual disability and autism spectrum disorder frequently co-occur; to make comorbid diagnoses of autism spectrum disorder and intellectual disability, social communication should be beloiw that expected for general developmental level.

    Note: Individuals with a well-established DSM-IV diagnosis of autistic disorder, Asperger’s disorder, or pervasive developmental disorder not otherwise specified should be given the diagnosis of autism spectrum disorder. Individuals who have marked deficits in social communication, but whose symptoms do not otherwise meet criteria for autism spectrum disorder, should be evaluated for social (pragmatic) communication disorder.
    Specify if:
    With or without accompanying intellectual impairment
    With or without accompanying language impairment
    Associated with a known medical or genetic condition or environmental factor
    (Coding note: Use additional code to identify the associated medical or genetic condition.)
    Associated with another neurodevelopmental, mental, or behavioral disorder
    (Coding note: Use additional code[s] to identify the associated neurodevelopmental, mental, or behavioral disorder[s].
    With catatonia (refer to the criteria for catatonia associated with another mental disorder)
    (Coding note: Use additional code 293.89 catatonia associated with autism spectrum disorder to indicate the presence of the comorbid catatonia.)
    Source: DSM-5 (The Diagnostic and Statistical Manual for Mental Disorder, fifth edition, 2013)

    Bagian A harus 3 of 3 symptoms, bagian B minimal 2 baru bisa di diagnosa sebagai ASD. dan sebaiknya kalo masalah begini cari clinical psychologist, clinical neuropsychologist ato developmental paeditrician, ato developmental psychiatrist. in my experience banyak parents worry dengan behaviour anak mereka, tapi setelah di observe bukan bener2 termasuk atypical behaviour atau memang ada disorder lain seperti social pragmatic disorder tapi bukan autism.
    kalo di sini dokter anak biasa cuma melakukan regular screening test, kalo di curigai beresiko autis biasanya di refer ke specialist nya dan mereka ga bisa diagnosis biarpun dokter anak kecuali memang punya pendidikan khusus di bidang developmental/ tumbuh kembang anak. dokter biasanya cuma belajar physiology of the body dan kalopun ada belajar autism in medical school they only touch on it. dan gak semua psikolog juga bisa diagnosis, hanya yang di bidang clinical aja. make sure kalo diagnosa di dokter dia memang developmental paediatrician, otherwise find others yang memang punya expertise ya. clinical psych biasanya itu uda 6 years spent only studying human mind and behaviour and how they are related to our physiology (body). karena dokter biasa mereka kurang mengerti tentang neurodevelopmental disorder lain yang beberapa punya gejala yang mirip dengan autis. contohnya communication disorder, ini ada 5 jenis loh.
    Aku praktek di australia, and from what I know semua diagnosis of mental disorder ya harus follow guideline ini.

  2. #62

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    Default Re: Autism

    Hii ibuk2.. share aja siapa tau berguna, atau ada yg blm tau. Terapi berkuda katanya bagus buat anak autis krn melatih keahlian motorik, sensori sekaligus emosi: Hidden Content

  3. #63
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    Default Re: Autism

    moms, adik aku asperger syndrome usia 20 tahun. aku butuh psikolog yang bisa tangani aseperger untuk adik aku konsultasi. dia ada kesulitan kuliah dan bergaul. ada yang bisa kasih info klinik atau praktek psikolog?

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    Default Re: Autism

    ada yang pernah ke Dokter Melly?salah satu pendiri Yayasan Autisme Indonesia,beliau praktek di RS MMC Jakarta,ak ud daftar buat anakku,tp baru dapat giliran april 2016 Hidden Content

  5. #65
    Permanent Resident a9u5tyn28's Avatar
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    Default Re: Autism

    Hi teman teman, mau nanya ada yg pernah terapi ABA di peace center? Lokasinya di harmoni. Mohon sharingnya makasih sblmnya..
    ♡in memoriam Eylam Mylo♡

  6. #66

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    Default Re: Autism

    Halo semua.. maaf, sekedar sharing saja.. anak saya tidak ada diagnosa autis, tapi ada 2 teman saya yang anaknya terdiagnosa Autis.
    kebetulan suami jual suplemen yang mengandung gluthathione dari Jepang, karena ada banyak Jurnal Medis yang menunjukkan manfaat gluthathione bagi penderita autis, maka kemudian suami saya coba tawarkan ke 2 teman saya dan setelah 2 teman saya itu berikan ke anak2 mereka, ternyata hasilnya bagus.. menurut mereka, anak2 mereka jadi bisa berinteraksi dengan lingkungannya. ada 1 yang mungkin tadinya pasif, sekarang gerakan fisiknya jadi lebih aktif. kita sampai terharu saat dengar mereka cerita..

    Semoga informasi ini bisa bermanfaat buat moms sekalian..

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    Default Re: Autism

    Sharing buku bagus mengenai anak autis, mungkin bermanfaat.
    Nama buku : Apakah Anak Kita Autis
    Penulis : Hardiono D. Pusponegoro
    Harga sekitar 65rb rupiah
    Penerbitnya lupa saya, tapi gambar bukunya ada

    Salam

    Hidden Content

  8. #68
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    Default Re: Autism

    @Hidden Content
    Makasihh ya mak utk infonya, mau ricek ulang ah. Oh iya mau tanya, sebenernya diet gluten free benar2 berpengaruhkah? Krn udah 4bulan anakku diet tp sepertinya nggak terlalu berpengaruh. Makasihh

  9. #69

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    Default Re: Autism

    Hidden Content Originally Posted by Annesher Hidden Content
    Halo semua.. maaf, sekedar sharing saja.. anak saya tidak ada diagnosa autis, tapi ada 2 teman saya yang anaknya terdiagnosa Autis.
    kebetulan suami jual suplemen yang mengandung gluthathione dari Jepang, karena ada banyak Jurnal Medis yang menunjukkan manfaat gluthathione bagi penderita autis, maka kemudian suami saya coba tawarkan ke 2 teman saya dan setelah 2 teman saya itu berikan ke anak2 mereka, ternyata hasilnya bagus.. menurut mereka, anak2 mereka jadi bisa berinteraksi dengan lingkungannya. ada 1 yang mungkin tadinya pasif, sekarang gerakan fisiknya jadi lebih aktif. kita sampai terharu saat dengar mereka cerita..

    Semoga informasi ini bisa bermanfaat buat moms sekalian..
    Saya minat suplemen glutathione, boleh minta kontaknya? Email ke Hidden Content

    Thank you ya

  10. #70
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    Default Re: Autism

    @castiel 10 untuk diet gluten biasanya dibarengi dengan diet casein . Ada alasan ilmiah dengan diet tersebut. Kebetulan saya dokter biomedis dan sebagian pasien saya dengan ASD (autism spectrum disorder). Untuk anak-anak ini dibutuhkan berbagai intervensi sinergis. Karena biasanya ASD itu sebagian besar banyak teman-temannya (gangguan kesehatan) seperti konstipasi, diare, gangguan pencernaan lain, alergi, asthma, dll. Mudah-mudahan si kecil cepat membaik ya Hidden Content

    @telurceplok , kamu tinggal di area mana ? Ada beberapa psikolog yang bisa menangani kasus adikmu

  11. #71

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    Default Re: Autism

    menyimak dl dr atas...
    anak pertamaku 4th, diagnosa autis...pny adek masi 2th.....

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  12. #72

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    Default Re: Autism

    Hidden Content Originally Posted by Shezza22 Hidden Content
    @Hidden Content
    mau nanya apakah kemarin diagnosa nya hanya karena anak belum bisa bicara saja? karena untuk diagnosa autis itu harus ada restricted atau repetitive pattern of behaviour minimal 2. diagnosa autis itu ada standarisasi nya dan manual nya namanya DSM 5. dan ini seharusnya berlaku seluruh dunia. dan juga 1 behaviour yang sama dari anak nya itu ga boleh di pake untuk memenuhi 2 kriteria diagnosis yang berbeda. karena kadang salah diagnosis, treatment juga ga tepat. dan juga autism is a spectrum, di dalamnya banyak disorder atau combination of disorder. treatment yang paling efektif harus multi-faceted.
    I am a practising clinical neuropsychologist btw.


    for reference ya ini aku kasih diagnosis criteria for autism in DSM 5:

    Diagnostic Criteria for 299.00 Autism Spectrum Disorder


    1. Persistent deficits in social communication and social interaction across multiple contexts, as manifested by the following, currently or by history (examples are illustrative, not exhaustive; see text):
      1. Deficits in social-emotional reciprocity, ranging, for example, from abnormal social approach and failure of normal back-and-forth conversation; to reduced sharing of interests, emotions, or affect; to failure to initiate or respond to social interactions.
      2. Deficits in nonverbal communicative behaviors used for social interaction, ranging, for example, from poorly integrated verbal and nonverbal communication; to abnormalities in eye contact and body language or deficits in understanding and use of gestures; to a total lack of facial expressions and nonverbal communication.
      3. Deficits in developing, maintaining, and understand relationships, ranging, for example, from difficulties adjusting behavior to suit various social contexts; to difficulties in sharing imaginative play or in making friends; to absence of interest in peers.

    Specify current severity:
    Severity is based on social communication impairments and restricted, repetitive patterns of behavior.

    1. Restricted, repetitive patterns of behavior, interests, or activities, as manifested by at least two of the following, currently or by history (examples are illustrative, not exhaustive; see text):
      1. Stereotyped or repetitive motor movements, use of objects, or speech (e.g., simple motor stereotypes, lining up toys or flipping objects, echolalia, idiosyncratic phrases).
      2. Insistence on sameness, inflexible adherence to routines, or ritualized patterns of verbal or nonverbal behavior (e.g., extreme distress at small changes, difficulties with transitions, rigid thinking patterns, greeting rituals, need to take same route or eat same food every day).
      3. Highly restricted, fixated interests that are abnormal in intensity or focus (e.g., strong attachment to or preoccupation with unusual objects, excessively circumscribed or perseverative interests).
      4. Hyper- or hyporeactivity to sensory input or unusual interest in sensory aspects of the environment (e.g. apparent indifference to pain/temperature, adverse response to specific sounds or textures, excessive smelling or touching of objects, visual fascination with lights or movement).

    Specify current severity:
    Severity is based on social communication impairments and restricted, repetitive patterns of behavior.

    1. Symptoms must be present in the early developmental period (but may not become fully manifest until social demands exceed limited capacities, or may be masked by learned strategies in later life).
    2. Symptoms cause clinically significant impairment in social, occupational, or other important areas of current functioning.
    3. These disturbances are not better explained by intellectual disability (intellectual developmental disorder) or global developmental delay. Intellectual disability and autism spectrum disorder frequently co-occur; to make comorbid diagnoses of autism spectrum disorder and intellectual disability, social communication should be beloiw that expected for general developmental level.

    Note: Individuals with a well-established DSM-IV diagnosis of autistic disorder, Asperger’s disorder, or pervasive developmental disorder not otherwise specified should be given the diagnosis of autism spectrum disorder. Individuals who have marked deficits in social communication, but whose symptoms do not otherwise meet criteria for autism spectrum disorder, should be evaluated for social (pragmatic) communication disorder.
    Specify if:
    With or without accompanying intellectual impairment
    With or without accompanying language impairment
    Associated with a known medical or genetic condition or environmental factor
    (Coding note: Use additional code to identify the associated medical or genetic condition.)
    Associated with another neurodevelopmental, mental, or behavioral disorder
    (Coding note: Use additional code[s] to identify the associated neurodevelopmental, mental, or behavioral disorder[s].
    With catatonia (refer to the criteria for catatonia associated with another mental disorder)
    (Coding note: Use additional code 293.89 catatonia associated with autism spectrum disorder to indicate the presence of the comorbid catatonia.)
    Source: DSM-5 (The Diagnostic and Statistical Manual for Mental Disorder, fifth edition, 2013)

    Bagian A harus 3 of 3 symptoms, bagian B minimal 2 baru bisa di diagnosa sebagai ASD. dan sebaiknya kalo masalah begini cari clinical psychologist, clinical neuropsychologist ato developmental paeditrician, ato developmental psychiatrist. in my experience banyak parents worry dengan behaviour anak mereka, tapi setelah di observe bukan bener2 termasuk atypical behaviour atau memang ada disorder lain seperti social pragmatic disorder tapi bukan autism.
    kalo di sini dokter anak biasa cuma melakukan regular screening test, kalo di curigai beresiko autis biasanya di refer ke specialist nya dan mereka ga bisa diagnosis biarpun dokter anak kecuali memang punya pendidikan khusus di bidang developmental/ tumbuh kembang anak. dokter biasanya cuma belajar physiology of the body dan kalopun ada belajar autism in medical school they only touch on it. dan gak semua psikolog juga bisa diagnosis, hanya yang di bidang clinical aja. make sure kalo diagnosa di dokter dia memang developmental paediatrician, otherwise find others yang memang punya expertise ya. clinical psych biasanya itu uda 6 years spent only studying human mind and behaviour and how they are related to our physiology (body). karena dokter biasa mereka kurang mengerti tentang neurodevelopmental disorder lain yang beberapa punya gejala yang mirip dengan autis. contohnya communication disorder, ini ada 5 jenis loh.
    Aku praktek di australia, and from what I know semua diagnosis of mental disorder ya harus follow guideline ini.
    dear boleh minta contact person km ga...jd aku bs belajar banyak tentang anak anakku...

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  13. #73

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    Hidden Content Originally Posted by nia Hidden Content
    @castiel 10 untuk diet gluten biasanya dibarengi dengan diet casein . Ada alasan ilmiah dengan diet tersebut. Kebetulan saya dokter biomedis dan sebagian pasien saya dengan ASD (autism spectrum disorder). Untuk anak-anak ini dibutuhkan berbagai intervensi sinergis. Karena biasanya ASD itu sebagian besar banyak teman-temannya (gangguan kesehatan) seperti konstipasi, diare, gangguan pencernaan lain, alergi, asthma, dll. Mudah-mudahan si kecil cepat membaik ya Hidden Content

    @telurceplok , kamu tinggal di area mana ? Ada beberapa psikolog yang bisa menangani kasus adikmu
    hi dear, pngn pny kontak person km boleh ga, mau tanya2soal diet khusus anak2 ku

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  14. #74

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    Default Re: Autism

    ada yg sudah sukses toilet training gak ya...sharing dong

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  15. #75
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    @Hidden Content
    Anakku 4,5 thn baru berhasil toilet training.
    Awal sudah pasti repot, aku nggak pakaikan popok k anak.

    Awalnya dia pipis lgsg bgt aja terus aku kasi tahu kalau mau pipis, bilang ke mami atau mbak, akhirnya stlh 2 hari dia mulai bilang "mau pipis".

    Yg agak sulit itu utk bab, agak lama duduk di kloset krn belum terbiasa. Dan awalnya kalau didudukin di kloset itu tidak mau dan nangis, tapi aku biasakan saja.
    Lama kelamaan biasa kok anaknya, skrg udah lepas popok. Walau ngomongnya masi tidak terlalu jelas yg penting sudah bisa bab dan pipis di toilet.

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